Catálogo de publicaciones - libros

Palabras clave – provistas por la editorial

cancer; childhood cancer; adaptation; psychological; neoplasm; oncology; sibling; social support; social adjustment; palliative care; end-of-life care; equity; public health approach; compassionate communities; caregiving; parents; psychosocial support; rare disease; advance care planning; decision-making; family caregiver; psychosocial care; communication; pediatric; adolescents and young adults; healthcare needs; chronic illness; AYA transition; Beckwith–Wiedemann syndrome; emotional-behavioral problems; psychosocial difficulties; psychomotor development; preschool-age children; pediatric chronic illness; rare diseases; family caregivers; gender differences; genetic or rare diseases; health outcomes; illness perception; parenting stress; siblings; bereavement; emotions; psychosocial distress; pediatrics; complex chronic conditions; pediatric to adult transition; special needs; interventions; care coordination; transition readiness; family burden; parental need; urea cycle disorders; E-IMD; inherited metabolic diseases; medullary thyroid carcinoma; psychosocial; young adults; life-limiting conditions; adolescents; age-appropriate; development; cognitive functions; children; families; medical complexity; policy; advocacy; n/a